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Hope rises when people rise!

Our Mission

Mission: To Fund clinical and therapeutic research, to raise awareness of CDKL5 Disorder, and provide support, inspiration and education to families, while developing treatments and standards of care to help improve lives now for those living with the CDKL5 condition. 

Vision: We understand that hope is at the core of what we do, but without a plan, it is just a wish.  We have a collaborative and cohesive plan that will help change lives now for the better!


This is our passion!

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