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Families are at the heart of what we do!  

CDD has profound impacts on every aspect of a family's life, and we hope to be a resource and inspiration for strength, perseverance and advocacy.  


Our children depend on us for every aspect of their lives, and the best way to help them stay healthy, strong and living their best quality of life possible is by staying informed, knowing your options and connecting and sharing with the global CDKL5 community.

It's important to stay updated with the latest on: 

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