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    CDKL5 organizations worldwide 
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    • Global Genes

    • National Organization for Rare Disorders (NORD)

    • Eurordis (Rare Diseases Europe)

    • Canadian Organization for Rare Disorders (CORD)

    • University of Pennsylvania Orphan Disease Center

    • Rare Voices Australia (RVA)

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    • American Epilepsy Society (AES)

    • Child Neurology Foundation

    • Citizens United for Research in Epilepsy (CURE)

    • Epilepsy Foundation

    • FACES: Finding a Cure for Epilepsy and Seizures 

    • Lennox-Gastaut Syndrome Foundation

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    • Genetic and Rare Diseases Information Center (GARD)

    • NIH/Clinical Trials (clinicaltrials.gov)

    • National Institutes of Health (NIH)

    • National Institute of Neurological Disorders and Stroke (NINDS)

    • National Center for Advancing Translational Sciences (NCATS)

    • Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)

    CDKL5 Research Collaborative

    PO Box 26

    Dexter, MI 48130

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    Contact us: Katheryn@cdkl5research.org

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