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The CDKL5 Research Collaborative, and Kiera's Hope Project officially launched at the Global Genes Patient conference, September 2017
Rare Disease Day interview with Paul W. Smith on WJR Detroit talk radio February 28, 2018
Kiera's Hope Project sponsors 2018 Rare Disease Day awareness initiative for 600 students and faculty in Dexter, MI
American Epilepsy Society (AES)
Child Neurology Foundation
Citizens United for Research in Epilepsy (CURE)
Epilepsy Foundation
FACES: Finding a Cure for Epilepsy and Seizures
Lennox-Gastaut Syndrome Foundation
