top of page

Sun, Aug 11


Gallup Park (Fast Pavilion)

Kiera's Hope Project 8th Annual Walk for CDKL5 Research

Come join us for a family fun-filled event and help us raise awareness for CDKL5 deficiency disorder! Attendance is FREE. Strolling along the beautiful Huron River in Ann Arbor's famous Gallup Park, let's shine a light on CDKL5 Disorder and celebrate our children and families!

Registration is Closed
See other events
Kiera's Hope Project 8th Annual Walk for CDKL5 Research
Kiera's Hope Project 8th Annual Walk for CDKL5 Research

Time & Location

Aug 11, 2019, 8:30 AM – 12:30 PM

Gallup Park (Fast Pavilion), 3000 Fuller Rd, Ann Arbor, MI 48105, USA

About the event

Come join us for a free family fun-filled event and help us raise awareness and funds for CDKL5 deficiency disorder!

If your schedule allows, we invite you to come walk with us at the beautiful Gallup Park in Ann Arbor, MI, and enjoy the festive atmosphere, great food and raffle prizes, and even take a stroll along the gorgeous Huron River. We would love to see you there!

Since we started the inaugural fundraising event in 2009, our Annual Michigan Walk has raised over $175,000 for CDKL5 research!

We ask you to consider supporting our cause again this year and keep the momentum going. We would love to have you join us at the walk, but even if you cannot attend, please consider a donation to our organization. All proceeds will benefit the CDKL5 Research Collaborative, a 501(c)(3) non-profit organization with an all-volunteer board of directors and staff. Operating costs are kept at a bare minimum, and most services have been donated. These are our children and we will not waste a single dime!

We have dedicated our lives to finding a cure for Kiera and all children affected by this devastating condition. There is hope for Kiera and all the children if we act quickly and continue research at an aggressive pace!

Please, help us find a cure in their lifetime!

With our Love and Thanks,

Katheryn and David Frame



  • Registration
  • Continental breakfast


  • Group photo
  • Walk begins

10:30am - 12:30pm

  • Raffle prizes
  • Family Fun
  • Entertainment
  • Refreshments


  • Free Admission

    Admission is free, but donations are gratefully accepted! Please register by July 31, 2018 so that we can plan for the correct number of attendees.




Share this event

bottom of page