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Sat, Aug 12


Gallup Park (Fast Pavilion)

Kiera's Hope Project presents the 9th Annual Walk for CDKL5 Research

Come join us for a family fun-filled event and help us raise awareness for CDKL5 Deficiency Disorder! Attendance is FREE. Strolling along the beautiful Huron River in Ann Arbor's famous Gallup Park, let's shine a light on CDKL5 Disorder and celebrate our children and families!

Kiera's Hope Project presents the 9th Annual Walk for CDKL5 Research

Time & Location

Aug 12, 8:30 AM – 12:30 PM EDT

Gallup Park (Fast Pavilion), 3000 Fuller Rd, Ann Arbor, MI 48105, USA

About The Event

In honor of Kiera and Bella, and all children living with CDKL5 deficiency, come join us for a free family fun-filled event and help us raise awareness and research funds for CDKL5 Deficiency Disorder! 


If your schedule allows, we invite you to come walk with us at the beautiful Gallup Park in Ann Arbor, MI, and enjoy the festive atmosphere, great food and raffle prizes, and even take a stroll along the gorgeous Huron River. We would love to see you there!

Since we started the inaugural fundraising event in 2009, our Annual Michigan Walk has raised over  $190,000 for CDKL5 research!  Will you help us top $200K this year?!

We ask you to consider supporting our cause again this year and keep the momentum going.   We would love to have you join us at the walk, but even if you cannot attend, please consider a donation to our organization.   All proceeds will benefit the CDKL5 Research Collaborative, a 501(c)(3) non-profit organization with an all-volunteer board of directors and staff.  Operating costs are kept at a bare minimum, and most services have been donated.  These are our children and we will not waste a single dime!

We have dedicated our lives to finding life-changing treatments for Kiera, Bella and all children affected by this devastating condition.  There is hope if we continue research at an aggressive pace!   

Please, help us work towards a brighter future for these amazing and special children.  Your Help is their Hope!

With our Love and Thanks,

Katheryn and David Frame, Kiera's parents

Janet Baker, Bella's mom



  • Check-in/Registration
  • Light breakfast/refreshments


  • Group photo
  • Walk begins

10:30am - 12:30pm

  • Raffle prizes
  • Family Fun
  • Entertainment
  • Lunch and Refreshments





  • Free Admission


    Sale ends

    Aug 12, 8:30 AM EDT

    Admission is free, but donations are gratefully accepted! Please register by August 5, 2023 so that we can plan for all attendees.






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