There are moments in life that take your breath away. For me it was my daughters first seizure when she was 8 weeks old. And there are moments that change the course of your life in a single word, CDKL5, and a single sentence, "It's very, very rare!" When I heard these words, it was October 2008 and my precious daughter, Kiera, was almost three years old. I was stunned and devastated. It was an uncomfortable place to be, because as a physician I was used to finding solut